Nuts, a ball and other 4-letter words! A young man’s story of testicular cancer. Part 1.

A number of years ago, I wrote a short memoir in first person perspective for a young man who I knew through a school I previously taught at. I had recently broken both my ankles whilst on holidays in Indonesia (perhaps more about that in another post) and needed to do something that helped me look outside myself and my situation. Here’s the first installment:

Hey,
Found you on face book and thought I’d say hello and ask you a couple of things that maybe would be harder to ask in person. I’m doing a lot of writing at the moment, since walking is out of the question, and I wondered if I could ask something. I know you’ve been ill this year (that’s about all I know about it) and I wondered if you might consider sharing your story with me. I would be honoured to write it, if you feel like sharing. Maybe it’s something you want to do yourself, so that’s ok too. I don’t know you real well, so if this isn’t ok, let me know. Just thought I could ask and you could honestly tell me what you think.
Thanks for even thinking about it,
Mrs Ross

It’s one thing being monitored for a condition to do with your nuts when you’re 12. That’s one thing, that’s a Mum thing, that’s a thing we don’t talk about. Well I don’t! It’s quite another to have to say to your mum, when you are 16, that not only have you been hit there, hard, during a footy game, but you think there is something wrong. How do you say that?

“Ah, Mum, my balls are hurt. Kinda swollen or something.”

And then the kicker,

“Can you have a look?”

Not easy to ask and harder to let her do it. You can probably imagine how it went from there. Both of us a bit embarrassed, mostly me, but this is mum after all. She’s pretty cool, but this isn’t good. Did I mention we were in the car on the way to footy training when I told her? Now that would’ve been hilarious if she’d had an accident then. Just to have to tell the police what she’d been doing and why she had her hand off the wheel. Anyway, we got through it and she agreed with me that there was something else going on. So then we take it (them? ha ha) to the professionals.

This isn’t that unusual for me. Apparently I have this hormone that is supposed to stop doing its stuff when you’re about 12 and mine didn’t. It’s caused docs some concern and I’ve had to be checked out every 6 months or so, with ultrasounds since I was 14. The first thing I thought when we got referred for an ultrasound was; pregnant women have ultrasounds, don’t they? And I’m pretty damn sure that whatever these odd hormones have done to me, I’m not pregnant!

They monitored me for changes in hormones and a benign epididymal cyst that I figured was like having a smaller third testicle and that’s what I told anyone who ever questioned me. So, having to strip in the doctor’s surgery is not new to me. About now, you’re probably thinking one of a couple of things – I’ve heard most of it before:

a) Shit! I’d hate to do that, imagine if the doctor touched you and….well, you know…?

b) Oh, that poor boy. That would be very traumatic through his puberty; I wonder how it is for his self esteem?

c) No way! Not now, not ever – keep it to yourself, man!

Or some combination of the above. So, let’s leave me there for the moment. In front of doctor, flat on my back, knees up, letting the guy with the gloves feel around my balls…

As I said, I’ve been checked out more than most guys my age, but apart from that, I’m pretty average I reckon. Got an older brother, younger sister and we get on ok I guess. My mum and dad split when I was 8 and I’ve always been pretty close to my mum. Pretty into football, been playing for 4 years and this year I’ve made the A grade. I’m supposed to make this as honest as possible, so I’ll tell you that I was pretty buff then. Training 3 nights a week and games on the weekend will do that for you. So I was feeling alright. And, before you ask, yes, I’ve got a girlfriend. She’s hot. I’m playing A grade and going out with Tash for about 6 months. School is ok. Life is pretty good. Then some *#@!wit gets his shin up hard in my groin in the second match of the season. I go down, winded, and that, I reckon, is where it all really starts.

I don’t know yet where it ends, but it’s been a long journey and it’s only been nine months since it started. There have been good days and bad, ups and downs I guess you could say. Each time I go down it feels like I can’t go any lower, but rock bottom is a LONG way down. I wonder whether it’s harder to fall when you’ve been so high before that. As I said, I’ve led a reasonably average life, but I’ve had it better than some.

{More to come next week.}

Updated: Part 2 is available here.

No fear of flying!

There is nothing like the feeling of flying – even if it is down a concrete path in a wheelchair!  A boy I don’t know very well, from year 11, who makes me laugh and teases along with the best of them, offered to push me back down to the next class I was helping with.  Actually, he first asked if he could sit on my knee and I could take him down to the ITD building.  I’m not sure who was more surprised when I compromised and said I would only take him as far as the concrete path went cause I didn’t do “off road” real well.  I think I would have had my bluff called if he had agreed, but I’d like to think that we would have given it a good go.  So I think that taking me to my next class was the trade off.  I certainly could have done that bit on my own, but I think there is a certain buzz from pushing people in wheelchairs, maybe it’s the control, so who am I to say no?  Sam is not careful.  Well, that’s what I reckon it looked like as we whizzed down the hill.  The three of us flying.  Me in the chair, Sam running behind me, holding the handles carefully as he pushed, and Josh trying to run and laugh at the same time beside his best mate.  I think I was more worried for the innocents who might inadvertently get in our path; there is no such thing as power steering on my wheelchair.  Although I did promise (some might say threaten) as we flew, that I would hunt him down on crutches if he let me go, I actually felt amazing.  Yes, I like being the centre of attention.  Yes, it’s exhilarating and a bit of adrenalin on a Monday afternoon can be a good thing.  But it’s more than that.  Sam’s been sick.  I haven’t asked him about it and I don’t know many details, but it’s been a long haul for him this year.  Cancer and chemo don’t make for a party sort of feeling.  Tears started for me when, at a staff meeting, he was given special uniform dispensation, cause apparently his formal one just “felt too heavy.”  There are the highlights though.  He’s back in his formal uniform now, as scruffy as they seem to be able to make it look, and having your best friend have his head shaved at the same time as you in solidarity and support must feel pretty good.  I’m going to have to ask, maybe.  Maybe it’s not important that I know.  But my guess is that if I felt like I was flying, I’m pretty sure that being able to run like that, laughing, in control of a teacher’s transport and scattering juniors as you go must have felt pretty good too.  Maybe I’m trying to make it into something it’s not. All of us were breathless as they stopped me at the door and wandered off – there was no ‘moment’ – but it was great!

Awkward Eating

I’m currently at the other end of the state to where I usually am, visiting my sister and newest niece.


My own children would have liked to come with me, especially the youngest. He adores babies; we (he) often stop prams simply by standing in front of them to talk to ANYBODY’S baby. So to have one of our own is a big deal…and she’s gorgeous!

Tuesday morning on the way to school and daycare, I reminded him that I was going on the plane that evening.

“Can I come, please?”

“Not this time, I’m sorry. It’s pretty expensive to go on the plane and we don’t have that much money. Everyone would have liked to come.”

🤔 “Do you have money for YOU to go on the plane?”

“Well, my ticket has been paid and so jowett I have no money. Luckily though, when I get there, Grandma and Aunty will feed me.”

🤔🤔😕 “Do you mean like Aunty feeds the baby?”

😲😲😂😂

“No. Maybe a sandwich.”

“I didn’t think it was right but I had to see if it was like that.”

Kids!

🖒🐛

I’m a person who…

Warning! Truth ahead!

I’m a person who:

*  has a very full life
*  loves doing lots with friends
*  is one of the worst housekeepers I know
*  is a master of the scurryfunge
* has lots of ‘doing’ energy outside of home, but not often ANY at home
*  has discovered she loves watching ‘gross’ medical and dermatological videos on YouTube
*  is learning much more about herself as she heads towards middle age
*  is generally accepting most of it
*  should not be allowed near stationery shops or ebay with $
*  used to buy to feel better
*  is a better talker than listener, but I’m learning
*  loves romance novels
*  doesn’t make the bed
*  is a mass of contradictions
*  knows productinating is a skill
*  has decided to accept depression, but not be a victim to it
*  excels at word games
*  has one of the best relationships with her mum that she knows
*  hasn’t properly cooked a meal at home for years
*  wants my kids to be happy in what they’re doing
*  is scared of missions trips, but going anyway
*  loves recognition for achievements
*  loves all children – mine or not
*  cries
*  loves organising 1 off projects or systems
*  suffers no embarrassment
*  is an advice giver
*  wears long pants because she IS too lazy to shave her legs
*  often realises later that I’m friends with someone who perhaps didn’t seem to like me to begin with. I find it a challenge I think
*  says what I mean
*  will take criticism, but doesn’t always like it
*  is generous
*  dislikes shopping of any kind, immensely
*  gets hurt if people think I’ve done the wrong thing and I haven’t
*  takes responsibility
*  asks lots of questions
*  will avoid blood tests if possible
*  would love to foster care but is afraid of losing or failing those children
*  doesn’t like pork
*  has phases and fads of things (by choice) and people (not by choice)
*  would love you to comment about yourself, or me.

☺🐛

Veritas, Eski

Anxiety and depression – My son’s story

Some of you know and have supported Logan and I recently so I’m sharing this with you in the hopes that someone else will be helped.

Depression doesn’t always make sense and many people don’t understand it. I’m sharing because of that too. Thank you for your support whether you’ve understood or not. I’m happy to chat anytime.

Please share with anyone you think will benefit from knowing.

I’ve copied and pasted an email I wrote to some people who knew more of this earlier, in the middle of 2014, so it may not all be relevant to you, but the info and sentiments are.

***********************************************************************************

Because we’ve spoken about this before and you are aware of what’s been happening for Logan, I want to keep you updated on Logan’s situation. I’d appreciate it if you could continue to keep your eye on him, like you’ve already been doing, and let us know if you see any changes.

I took Logan to a psychiatrist on Wednesday and she agreed with my ‘mum diagnosis’ of chemical depression within 10 minutes of us all talking. After a thorough discussion, she’s prescribed him a 12 month course of daily Zoloft, which she will monitor closely with us. She believes that we will see, and Logan will experience, positive change within 3 weeks. All going as expected, he should be functioning normally within three months and in six be back to where he ‘should’ be. This is wonderful, prayed for news, which is exactly the outcome I had hoped for from yesterday’s appointment. Thank you for praying with me.

As with any medication, there MAY be some side effects and although these are mostly minor, we want to be onto them. Especially these next two to three weeks, Logan might be more tired (not sure that’s possible); have slight headaches; have more ‘body irritability’ like jumpy legs, unable to sit still and tightness or clenching of jaw or grinding teeth. None of these presents a problem, it’s just a settling in period. As I said, she’ll be monitoring him every few weeks in person to make sure that’s all. After the initial few weeks, most people have only positive change and because we often don’t see small changes from so close, you may see these more than Logan does at first. I’ll be noticing every tiny thing, I’m sure, which will be a nice change to noticing the decline, but I’d love your feedback too. Logan knows that you are aware of the continuing story and is, even now, willing to talk to you about it all. He has briefly mentioned his anxiety to his friends, but has trouble knowing what to say. As you can understand, some people have negative perceptions in relation to psych-anything, so he’s nervous about judgmental reactions.

This next is probably the most important part of my explanation today and what I hope will help others. It’s only due to my first hand knowledge of chemical depression that I’ve seen beyond what often presents as grumpy, ’emo’ teenager,Neanderthal behaviour and really known he wasn’t ok. It took a close friend’s amazing transformation recently from severe, self harming depression to normal, functional, and finally happy person, for me to seek a psychiatric referral. The psychiatrist had worked with my friend’s medication over months to achieve this and it’s been a miracle. It’s the best discovery I’ve made. I’ve been diagnosed, and improperly treated for, various types of depression for the past twenty years. I’ve been to multiple GPs and referred to counsellors and psychologists and have attended each session feeling like a fraud and a ‘mental case.’ I rarely had anything to discuss and my catch cry has been, “There’s nothing wrong with me; why is there so much wrong with me?” Why did I still feel so hopeless, helpless and lacking in any energy or motivation?

I have tried a number of anti-depressants with varying degrees of un-success, prescribed by GPs who have tried. When one suggested post natal depression when Toby was 4 years old, I wondered if I really was in the ‘too hard’ basket. My latest GP, just prior to finding out about Theo, was the first and only person to use the words, ‘chemical depression’ and she told me it wasn’t psychological, but my body’s inability to manufacture Seratonin, among other things. She said I’d likely have to be on anti-depressant medication for life and likened it to some diabetics having to inject insulin. I felt such relief at that, finally having an answer that wasn’t a mental issue. She’s been amazing, guiding and supporting me through what’s been a rough few years with pregnancy hormones and true postnatal symptoms. I’ve taken my medication as prescribed and have been ok; but only ok. Theo’s nearly two and I’m still only ok. I am so used to being flat that I’ve only really recently realise that I’m probably operating at 75% of what’s normal for me. My head’s above water, but it’s easy to go under. With the change I saw in my friend, I’ve self-referred to this same psychiatrist Logan saw. I’ll see her next week but through the tiny bit of my information I gave her today as background for Logan, she’s already determined my medication is wrong for what I have and that I have been improperly diagnosed and treated for 20 years. She has said that most people can be treated for chemical depression like this in a relatively short, finite period, easily with the right prescription; which is a psychiatrist’s specialist area. I’ve never felt such relief and frustration and anger at the same time!

Although I knew psychiatrists could prescribe medication, I had the mistaken, but disturbingly common, view that psychiatrists were the top of the mental health hierarchy: the more crazy you were, the further up you went. The thing that’s perpetuated this myth and given me what I feel are wasted decades is that no one, not GPs, counsellors or psychologist – NO ONE has ever suggested I seek a psychiatrist’s help – and they SHOULD HAVE. If they had, I’d have done so. If they’d suggested amputation, I would have gone there too in an attempt to feel ‘normal.’ I tell you this because I know I’m not the only one in my situation and although I’m finally going to get this all sorted starting next week, I’m angry at such wasted decades. The only thing I can see that makes it ok is that God has a plan for this knowledge and experience. Because of it, I’ve been able to get help for Logan early and not shrugged it off as grumpy teen. Because of this, I may (and hope to) direct others to seek the right help. And you’re some of the first I’ve told. Maybe you can pass this on to help someone else.

I so appreciate that I’ve been able to honestly share this and my experiences with you all individually over the past few years. It seems trite, but isn’t, to say thank you so much for your support and observation and care of both me and Logan. It was so good to know others saw what I did in him and cared enough to tell me. Thank you for continuing to pray for us. Please ask about and share my journey with anyone who needs it and WATCH THIS SPACE! for new and improved Ross’. Bit scary, hey?

Veritas, Eski

Tough life!

It’s a tough life!

I’m on an excursion today with my Year 11/12 English Communication class. We are here because we are learning about persuasive speeches. Yes, really.

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I know, it sounds unlikely. But despite appearances, this is a valid excursion. I’ve tried something new with my class this term. All the info I gave them was that we had to complete a persuasive speech for our assessment and they planned the term in a way that they would like to learn. Of course, they were quick to point out that they’d NEED to visit a theme park at some point.

“Persuade me,” I said.
“We could write about which is the best ride or theme park,” they said.
“Ok,” I said, “I’ll try.”

So I spoke to our Head of School, explaining the importance of the students taking control of their learning and being inspired to learn. I think I was a bit surprised when he said yes! The condition was that I have the requisite paperwork in the very next day and that I make use of MY persuasive skills to write the letter to parents. I’m pretty impressed with my efforts…

Excursion – Wet n Wild
This term, 11/12 English Communications are involved in the creation and monitoring of their term plan. During the first lesson of the term, students collaboratively developed a Term Overview and detailed what they felt they needed to learn in order to complete the assessment during the exam block. To motivate and inspire them to write an interesting persuasive speech for the exam, they decided to spend the day at Wet ‘n’ Wild on Thursday, 22nd October. Due to the in-class nature of the planning, this is an optional activity which is not included in our excursion schedule. We encourage you to allow your child to attend to encourage them as they take responsibility and ownership of their learning.

What do you think?

I sent some of the photos above to the HOS with the message,
“Wish you were here?” He was thrilled. This is the message I received in return,
“It’s important, she says…It’s for the students, she says…it’s valuable learning time, she says…💩.” Such support! 😜

I also received a few messages from my Year 11 class (or what was left of them; there were a number of excursions today).

J: “theirs only 3 of use that are in english… yay [sic]…do we still have to do today’s work?”
{I reply in the affirmative}
“Oh.”

G: “Here’s my work from today. It’s a bit quiet.”

G: “Hello again, I would just like to point out how creepy the front page of the pdf document is…sorry if I ever look like this in class 🙂 Feel free to add a caption.”

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I nearly fell off my banana lounge with laughter! That kid looks positively murderous! I’m sorry if ANY of my students feel even the remotest reason to look like this in my classes!

Caption away! I’m very much looking forward to what you all come up with.

So there you go. My day; my students; only 3 of whom decided to line up for a ride at the exact time we were to meet, were 42 minutes late and held up the whole bus full of those waiting. And they did apologise. After asking if they had time to grab a quick frozen drink!

And my new swimmers were a great success – to me.

Veritas, Eski

Extreme Do-Over! A fairy story for modern times.

I want to tell you a story. 

Once upon a time, not so very long ago, in an ordinary suburb, a woman – let’s call her Sally.

(Or, to be honest, it is me.)

Anyway, a woman, strategically organised jobs for her family so that everyone was doing their share. She was so considerate that she allowed her family their choice of chores and allocated what was left to herself. Now this woman has never been renowned for her particular abilities in terms of housework. In fact, she reduced her immediate family to hysteria when she landed a Home Ec teaching position. She is possibly one of the least domestic people we know. However, for the short term, the chore sharing went well and everyone was in clean, folded clothing.

A little while ago though, her life filled up more than usual and something had to go. Sighing disappointedly, she removed the self-replicating, rapidly increasing mountain of clean, unfolded clothing from its normal slothful position on the lounge room couch/floor to the hidden confines of her small walk-in wardrobe. What a relief to have this monstrosity invisible to anyone who dropped by. Now she only had to wrestle with it once a day in order to find her outfit. As happens with self-replicating life forms, however, the mountain grew and grew as days passed. Infuriatingly, no housework fairy tiptoed in at night to do it for her. In fact, not even one fairy tale creature crossed her path to offer redemption in exchange for the soul of her first born or her undying affection. Bah, humbug!

More time passed, but the woman knew she would conquer the ever widening pile soon, or die trying. As is often the case in these moral tales, time moves more swiftly that we bargain for and moment is lost. Yesterday, the clouds of the oncoming storm released their deluge upon the home of the poor, unwary woman and her family. (Literally, a pipe from the hot water service blew inside the wall between the laundry and the back of the wardrobe.) For long hours, the storm raged. (Possibly 5 hours til her husband and kids returned home.) The woman’s wardrobe, then (carpeted) bedroom, the hallway, then the (carpeted) bedrooms of the (4) children, the (carpeted) loungeroom and linen press transformed from dry, to damp, to swamp over the space of one afternoon. Upon returning to the dwelling, her longsuffering husband found frogs croaking, dragonflies skimming and a mountain of once-clean washing, steaming in the (carpeted) estuary (2 inches deep) that had been their wardrobe.

In a valiant attempt to stop further damage, said husband attacked the source with gusto. (He turned off the water.) He and the children, frustrated with the limited capacity of their mop, thought laterally and used the already wet washing (towels and quilts first, then everything down to undies) to soak up as much of the excess water as they could. It must be noted that on its travels the water had surged and back washed through the cat litter tray and so these once-clean items were now pungent and aromatic. What a delightful scene greeted the woman when she returned from inspiring the minds of the future. A tired family and a gruff wizard in plumbing kit were still at work determining the source of this evil. Holes were blasted in walls until the copper culprit admitted its guilt. (A 2 millimetre wear in a weld.) Captured and replaced with a sturdier guard, the culprit was wrapped for The Insurer’s inspection and the family once agin bent their backs to shift sodden, smelly piles of washing to the relative safety of the cork floor in the dining room. 

Fearing for their safety, and comfortable sleep, the husband manhandled (cause he’s a man) the thankfully dry mattress to the outside room and they, their youngest child, a couple of cats and an attention seeking dog attempted to sleep whilst still listening out for The Insurer’s promised vacuum wielding water diviner. Who promptly arrived at 10 the next morning while they were out. 

The woman long (3.5 hours) regretted her laziness as she slaved over huge, costly ($85 total), roasting machinery (laundromat). What had once seemed a fine plan now tortured her day off and her slim purse. She knew that laziness was not the answer. When she arrived home she found herself and her family surrounded by towering fluorescent orange dehumidifiers and fans with such gusting power they bellowed throug the hallway like an engine of a jumbo jet. Ah, the peace; the tranquility; the sarcasm!

The woman’s patience was tested further with a call to The Insurer who requested that she provide evidence of ownership of her 10 year old bed frame, two spare mattresses, numerous secondhand bookcases and desks and a, now structurally questionable, MDF toddler bed in the likeness of a well-known, blue, British steam locomotive. 

So, although this vicious attack of liquid was not the woman’s fault, she felt sorely tried by its ramifications. And the washing mountain? I hear you ask. Clean, dry, partially folded and safe.
And still in the back of the car.

Absolute verity,

Eski Caterpillar 💦

@eskicaterpillar hits Twitter!

I’m a #GenNext2015 Generation Next – Health and Wellbeing of Young People today and they’ve introduced a Twitter feed. I’ve never ‘done’ Twitter before, and to tell the truth, I still don’t totally understand how it all works. I’m a reasonably tech savvy person, so please comment to help me understand it.

Check out this awesome conference and…

Follow @eskicaterpillar on Twitter.

Veritas,

Eski 🐛

Veritas, Eski

Housework? I Say No!

Mine is the sort of home where guests for lunch present – apart from menu planning – the added unspoken question as to whose job it will be to clear the dining room table of its drifts of paper, unopened letters and things that people dumped there on the way in from school.

And that’s the way I like it! (Mostly)

Thanks to Annabel Crabb for this eye opening, truthful, realistic and freeing article.

Lesson to my Daughter.

Dust bunnies everywhere – and they are – I salute you. I’m off to sprinkle glitter; sew Hulk costumes; read stories; watch tv; play Lego or any number of the thousand and four things I’d rather be doing than housework.

🐛

Sensory Overload

I am utterly blessed. In the midst of an overload of senses; no, through them; God has blessed me.

I have a hot little hand on my face as I try to read. It pokes me and twitches at the entrance to my nostril, making breathing odd. If I turn over, I’ll have, instead, little untrimmed toenails in one of two choice spots: kidneys or buttocks.

A short reach away, I hear the thunderous roll of snoring. I prod and suggest turning over and for a moment, the storm abates. But only for a moment. Without any lightning to warn of its advance, the long drawn in breath offers new meteorological mysteries.

Further distant still, the irritating whine of machinery. It’s monotony is broken only by the insidious, regular alarm throughout the night.

Dogs, ours, bark at intruding nothings. Loudly.

If I leave this horizontal plane and venture out, I will likely find lines of light break through the darkness. Here and there, I will hear more cacophony to interrupt my rest. From one doorway, little light accompanies the pings and whirs of levels unlocked by a well known Italian plumber in overalls. From another, brighter light pops out, as unyielding as the so called notes screamed by a boy-man wearing more eyeliner than I ever have as he bemoans his newly single state.

Should I turn and retreat, my hapless tarsal structure is likely to be assaulted by weaponry at floor level. Possibly this time, I will encounter the string of a cheap bamboo bow. As I lightly sidestep the threatened trip, my other foot may find the arrow; or Danish building materials with spiked edges; or an assortment of miniature bovines cavorting without care near an enclosure of even smaller dinosaurs; or a shadowy feline hoping for food.

But despite this risk; this riot; this rude interruption of horizontal calm that I say I’d prefer; I am utterly blessed.

Little fingers and toes are not a blessing all who wish it share.
Snoring means he’s here with me.
The whir of machinery speaks of luxury others do not have.
Lights and music mean my children are home safe. They can be and do just as they wish without fear of persecution, despite my musical preferences.
Even the scattered hazards of a family hall shout freedom, safety and luxury.

I am utterly blessed.

Veritas, Eski