Month: Sep 2017

Nuts, a ball and other four-letter words. A young man’s journey with testicular cancer. Part 5.

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This is Part 5 in a series. Read Part 1 here, Part 2 here, Part 3 here and Part 4 here.

I admired Sam’s casualness and candour when I asked him to read the fictionalised (my best guess) version of what thinking about sex and masturbation might have been like after going through chemo and trying to come to terms with one testicle. I said that it was really a way of asking him some of the tough questions – had hair grown back? How had sex been? What did he feel like at the time?

He took it in his stride, especially since we were in a food court at our local shopping centre at the time. He gave me some straightforward comments during reading –

“We haven’t. Ever.”

“I only threw up once during chemo.”

“We couldn’t kiss while I was having chemo, my white cell count was too low and I could’ve caught anything.”

“Is this supposed to be me masturbating?”

“Well, yeah.”

“Nah, couldn’t do that either during chemo, all the chemicals going down there and everything.”

So I haven’t changed it, cause apart from those comments, the ideas are right and the fears are very true. Just so you know, this 5th part, then, is fiction, for story sharing and understanding of emotions. Sometimes it’s hard to put words to the exact truth, especially when your general description of emotions is, “Like crying and stuff.”

On his better days, he wanted more than to just hold her. On his better days, his mind was clear enough to let him think at all. Ordinarily this would have been a good thing. Any thing to get out of the cloudy fog of the drug haze he was in much of the time. But right about now the only thing clarity was good for was helping him see what he was missing.

As the hours drifted by and his mind cleared, he could see her face. She was so pretty, all blue eyes and beautiful smile. She was more than pretty and she wanted to be with him! Bit unbelievable sometimes. During the chemo – when he was feeling his worst, he couldn’t think of why that was. Why would she want him? Useless body couldn’t even keep itself together, wasting from these foul chemicals, not much to look at. And that was on the good days. On the worst, he was too weak to hold his own head up while he threw up. Over and over. Hadn’t eaten a damned thing but it didn’t make any difference – he’d vomit til he felt like he was about to turn inside out.

But still, when he returned to school, she was still there, still his. He could barely believe it when she’d let him kiss her; when she’d linked her hand with his and kept it there even as the duty teacher walked by. He’d known they’d been seen; he could see it on the teacher’s face and was torn between jumping up from the bench and shouting that he didn’t need the pity, and closing his eyes and hoping they wouldn’t be reminded of the ‘daylight’ rule. Didn’t want pity, but he didn’t want to let her hand go either. Her hand was so different to his. Long, slim fingers as opposed to his shorter, thicker ones. Beautiful clean nails, beautifully soft skin.

On the bad days he imagined holding her hand even as the needle pierced his skin. It was almost enough to make him forget about the chemicals that would push him over the sick/well border line. On those days, he rested his own hand on the sheet draped over his own thigh, wishing, imagining it was hers. It had to be above the sheet, not only cause it would look suss – not that he could imagine doing that in a shared room; let alone with that damned cannula in the back of his hand. Not only because of what it would look like, but because if he touched his own softness, lack of muscle, lack of hair. Shit, he hoped that grew back! Wasn’t so bad on his head – lots of guys got around skin head and no one cared. Josh was doing it even now and he was getting along ok. No, but most other places, where there was meant to be hair, no one would think that was normal. If he touched his own hairless, smooth skin he could no longer imagine her touching him. Why would she want to? He certainly didn’t. He had. Before. Not that he’d readily admit it.

He’d been home on his own. More out of boredom than real need, he’d tried to imagine her there. He could manage that bit ok, she was easy enough to picture, even though she’d been in her school uniform in his imagination – weird! Oh yeah, he could definitely imagine her there. He’d run it through in his mind a time or two; he’d seen enough to know what it was supposed to be like. In his mind, she put her hand on his and he’d pulled her gently towards him and kissed her. That bit he knew. That bit was true. But in his mind, that wasn’t the end. At home, by himself, he felt her lean over him, push him back on his pillows and stretch out on her side beside him. He closed his eyes and felt her hand (his) run down his chest and onto his stomach. Even as he felt the satin of his boxers, he knew that she wouldn’t have done that, not yet anyway, but hell it was his fantasy, so why not? So he continued, willing himself to believe she was really there. It was easy at first, the satin slid under his hand so easily. He closed his eyes and felt her fingers stroke him. He pressed up and felt himself stiffen against the satin fabric. In a very short time that wasn’t enough. He pressed up again and breathed in hard as he felt skin against skin under his boxers. Just thinking about her hand on him made him harder and his grip tightened. Ah, if only. If only she was here. If only it was her hand on him right now. If only she could be moving against him like this, just like this, and like this…ah.

It was only afterwards, eyes open, frustratedly aware that she wasn’t there and wasn’t going to be any time soon. It was only then, as he washed, that he could see it clearly. He’d heard the expression, “In the cold light of day” but suddenly for him it was, “By the cold dampness of a washcloth.” She’d never be there. Her hand would never hold him like he wanted her to. You needed to be normal for that sort of thing to happen and he wasn’t, not at the moment, not anymore, maybe not ever. He looked down at himself. Friggin’ chemo – meant to kill off the sick cells – killing off his body hair as well. Smooth as a little boy. Smooth and hairless. What the hell would she want with a little boy? Fuck it, she wasn’t going to be holding someone there. If she did, it wasn’t going to be him, smooth and hairless.

It wasn’t that he never got hard at the thought of her again. That did happen and how! But he couldn’t even bring himself pretend it was her, skin on skin – and it wasn’t even easy in the dark, under cover.

Not long after, he’d been back at school and she noticed his flinch when she put her hand on his thigh,
“What? Ticklish?” she laughed, bright eyes lit up as she danced her fingers down his leg. Her pretty fingers walked over the bare skin of his knee. He couldn’t breathe – did she notice? That he was hairless there, too?

“So soft,” she flicked a glance at him, cheeky. She couldn’t know what she was putting him through. Not soft, nuh uh. Don’t say it, he silently begged, don’t ask me if this goes all the way up. Just keep dancing your fingers over me. Don’t say soft. She obliged unknowingly, circling his knee cap with her nails,
“Round and round the garden, like a teddy bear….”
He breathed in slowly, don’t say soft, don’t say I’m soft…
“One step…” Her fingers left his bare knee as she goose stepped them along his thigh and he could breathe out again, for the moment.
“Two step…” She looked up at him as he drew in another breath, her eyes showing a teasing light. His eyes locked on hers, his breath held now. What if she stopped? What if she didn’t?

He knew the exact moment that she remembered where they were – in public, at school – and where her teasing, dancing fingers were headed. He knew exactly where her thoughts went as she laughingly began the next line,
“Tickle you under…oh…”
It was her breath that left in a rush then, her face flushing as she drew her now still fingers up to her mouth. Her eyes squeezed tightly shut and then opened just as quickly as he repeated her last word,
“‘Oh’ Yeah, I reckon.”

Neither of them spoke again for a moment. What was there to say? Too soon the bell sounded, signalling the start of afternoon classes and they were surrounded by classmates. Now what? Some invisible line had been crossed, now there was THAT between them.
“Later?”
“Later.”

She couldn’t believe her own stupidity! Now what? What if he thought she’d meant to say it? What a ridiculous come on would that be? Tickling! Yeah, that was exactly what guys wanted. Actually, how would she know what guys wanted? But she was pretty sure nursery rhymes weren’t high on the list.

House Sitting – Rules & Contradictions

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As a house sitter, I’ve mopped more floors in someone else’s home than I will EVER do in my own! I’m a much better house sitter that I am house keeper and, because of that, I’ve learned a few things that I thought I’d share with you.

If you’re a house sitter, always be a better house keeper than the owner. Not ALL the time, just when you’re in their home…or at least on the day you leave.

If you’re a house owner, realise that your home won’t really look the way you left it. If you’re lucky, they might be a better house keeper than you, but…….probably not.

Communicate. This is so important for both sides. Ask questions! Lots and lots of them.

Do you want something done, or not done, while you’re away? Write it down. Write everything down. Where is the vacuum cleaner? Where on Earth is that tiny white on white button that turns on the dishwasher? What does the dog eat? Write it down.

Uh oh. Broken something during your stay? A cup? Plate? Door knob? Write it down. Text if necessary, but at the very least leave a note and an apology.

Be honest. Before during and after the experience, be honest.

I’m bringing 4 kids under 10 and our own inside Dalmatian. We were hoping to have just one person stay with our anxious Shi Tzu.

I’ll be out every day from dusk til dawn. Our pets need someone all day, everyday.

Be realistic.

If your house owner says, “Help yourself to whatever you’d like,” they don’t actually mean that you should eat them out of house and home. Sure, have at the pantry…in moderation. Perhaps don’t eat all of their chocolate stash and drink all of their boutique beer or feed yourself for the week on everything they own. If you had to shop and replace it all before you left, would the grocery bill frighten you? Hmmmm.

If you say, “Help yourself to whatever you’d like,” don’t be surprised if you come home to no milk, bread or chocolate. Say it, mean it.

Be prepared for weird.

It doesn’t seem like much to mind someone’s house and maybe pets, does it? And most times, it’s not. But sometimes…..

Last night, the little old terrier I’m hanging out with this week had a bad night. She’s been fine for the rest of the time, but last night she couldn’t sleep for some reason. Her insomnia and dementia had her pacing her garage bedroom, yipping. Loudly. She’d been fed, watered, taken outside for the necessities, but nothing was working.

So, what to do? It’s now 10pm. Let’s try it all again. Is she too warm? Too cold? Needs to go out? Needs to come in? Water, check. Food….bit more, check.

30 minutes later, it hasn’t worked.

So, what else might work?

I’d turn on the light, but she’s blind.

I’d turn on some music or white noise, but she’s deaf, too.

What to do? What to do?

I’m a mum of 4, I’ve got this.

So now it’s a little past 1am and I’m sitting by the dog’s bed, patting her tiny little self as she circles and pads and sniffles and, finally, falls asleep.

They say there are rules for this house sitting business. I’m sure I’ve forgotten some. What do you think? Tell me what I need to know for next time.

Nuts, a ball and other four-letter words. A young man’s journey with testicular cancer. Part 4.

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This is Part 4 in a series. Read Part 1 here, Part 2 here and Part 3 here.

Sick to death of hospitals, specialists and waiting rooms!  Uncomfortable chairs, fake plants and tinny elevator music.  Some rubbish that even Mum doesn’t like.  Miserable looking patients, waiting for their turn to whine to the specialist about how many times they’ve thrown up this month or how they’re still afraid that IT’ll come back. IT being the cancer.  Like it’s some big secret conspiracy.  For me, I’m there cause I have to be – if they’d let me run the interview, it’d go a whole lot faster too – then I could go home and leave behind the pitying stares of the “support people.”  Their silence speaks pretty loudly,
“Oh, he’s young isn’t he?  Poor thing.” And then the tightly drawn, pathetic smile and the pitying downcast eyes as I stroll by, my thongs slapping against the regulation medical lino.

If the specialist would let me run the appointment – much faster and he’d still know what he wanted to.

“Yep, my ball is still missing.”

“Yep, scar’s healing – itchy though.”

“Yep, pickline hurts like hell, but it’s still there.”

“Yep, lost all of my hair now and the chemo still makes me feel like shit.”

“Feel like a druggie and can’t wait to get this over with.”

“What can you do for me? Well, are you a miracle worker?”

“Can you grow back a normal nut and all of my body hair? No?”

“Fine, I’ll take a Coke, ta.”

“Let’s get this scan thing done, ay?  Where?”

“Yeah, I know.  Drop me pants, move dick out of the way; nah I’ll do that bit thanks.  You concentrate lower.”

“Hey, this chemo’s got something going for it after all – can’t get a boner when you’re this drug-fucked.”

“At least I don’t have to be praying against that under my breath the whole time you’re down there.”

“No, thank you, Doctor.”

“That will be all, see you next month.”

See? Done and dusted in minutes.  Gary’s good for this though.  I’ve never called him Dad, and he doesn’t expect me to, but he’s been in these waiting rooms almost as often as Mum and me.  Always the same, brings his mag, but only reads it if my eyes are closed.  Without that horrible pitying look, he’s ready to talk or listen to me if that’s what I want.  He’s copped a fair bit of mouth from me and a fair few tears from Mum.  She doesn’t cry in front of me – not if she thinks I might be listening either.  She’s always like,
“Right, mate.  Let’s do this, hey?”

I haven’t been embarrassed in front of Mum – if ever I have been a bit shy of stripping off, she reminds me that she’s changed more of my nappies than even she can remember and there aren’t any places that I’ve got that she hasn’t kissed better at some time.  I was much younger then though, Mum! So, being Mum, she doesn’t cry to me, just to Gary when she doesn’t think we can hear her.  I’ve only seen her really lose it once this whole time and that was enough to last me a long time – it was awful!

Nuts, a ball and other four-letter words. A young man’s journey with testicular cancer. Part 3

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This is Part 3 in a series. Read Part 1 here and Part 2 here.

I don’t think I have ever been so devastated in my life and I never want to be again. I’ve never had to use the word devastated before, but that’s what I was. I’ve lost my left ball for fuck’s sake! I cried until I couldn’t breathe and then I cried more. My body hurt like hell from the surgery and my lungs were gasping for breath and still I couldn’t stop. At the time I couldn’t think straight and even when I could, I couldn’t get my head around it. Why would they do that? I’m only sixteen. My body hasn’t got enough testosterone to make me fully a man. One ball, that’s like half a eunuch / half a gelding – good for nothing. What if my voice doesn’t finish breaking properly? Will I LOOK lopsided? I’ve only just got most of my body hair, will that go too? Of course, I don’t want kids now, but I might, later. I haven’t even slept with my girlfriend – will I ever get to do that? Oh, Tasha! I’ve read in books sometimes that “he cried like a little girl” but I didn’t. I bawled and screamed and cried and sniffled just like a guy whose life has been cut off, just like his left nut, before he’s had a chance to do all that bloke stuff. I must have passed out again then, what was I gonna I tell Tash?

The doctor and Mum explained it to me more once I was fully awake, but it felt like the worst nightmare ever. I was trapped in it and couldn’t get out. Instead of a cut in my sack, I had stitches and pain just above where my pubes had been. That’s a story in itself, the shaving there. So, pain and stitches on what they called the ‘bikini line’ – yeah right, bikini line! But I’m getting a bit off track. It turns out that when I was fully under, the doctor had another grope around and didn’t like the feel of my left ball. Great. So, for some reason I still don’t fully get, they cut me to the left of my dick and pulled the whole ball up through there. When he saw it, the doc went straight out to Mum in the waiting room,

“Ms Brown, I think its cancer.”

I reckon he probably told her more than that. All the technical stuff that she has always known more about than me; the fact that the cyst had overtaken the whole epididymis on my left nut and that the reason it stayed enlarged was that as the swelling from the knock to the groin was going down, cancer was coming in and taking its place. Mum reckons that there had always been the concern that my cyst might go cancerous, but we hadn’t talked about it – Mum’s a ‘don’t borrow trouble’ sort of person.

Right now though, she wasn’t borrowing trouble, it was standing in front of her and Gary in surgical scrubs offering to give her the lab results just as soon as he’d finished cutting my nut off, stuffing what was left of me back in, stitching me up and dissecting the traitorous, disloyal, backstabbing thing. I don’t blame my mum, I wouldn’t have wanted to hang on to a cancerous nut, but shit it scared me when I first felt it gone. What is the world coming to when you can’t trust your own gonads?

Later, after my chemo, I was allowed to wear a beanie to school. A teacher at the Junior School called me on it when we were over there for the some assembly or service. I can’t remember exactly what she said, but it definitely had the words “disrespectful” and “inappropriate” thrown in for good measure. I could have done it any number of ways, but I thought, damn it, she’s being so rude to me, getting up in my face. So I snapped,

“I’ve had cancer!”

I felt like adding, “Bitch” but managed to stop myself. I made her feel like shit though, which felt pretty good actually. She knew who I was, I suppose stories like mine are too good to stay secret, not that it was ever supposed to be a secret.

“Oh, you’re Sam,” and she walked off, no sorry or anything. Bitch.

After my surgery and chemo, I started riding my bike again – had mates ask about that – the pressure on my groin was obviously not a problem when I stopped catching the bus and started riding to school. Mates are funny like that; maybe it’s a guy thing. We are always, according to my sister, giving each other stick about being a man, or not. She’s probably right though, way back in Primary school I remember playing footy with my mates and it was a badge of honour to be able to walk after a good hit to the groin. So most of them knew a bit about what was going on, but not much, and while I reckon they cared, what could they do? I had a third nut, and then that I’d lost my nut in surgery. Not much chat, guys don’t do that,

“You alright?”

“Yep.”

And that’s it. Miss reckons that girls would have laughed and cried about it together and talked about every little feeling. I don’t get it.

Nuts, a ball and other four-letter words. A young man’s journey with testicular cancer. Part 2

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{This is Part 2 in a series. Read Part 1 here.}

So, we’re at the doctors, like I said. I’m trying to concentrate on the really uninteresting ceiling while he feels around. It’s slow going, this examination, cause even though I’m trying to relax and he’s treating me casually, there are certain physical reactions that just happen, regardless of how interesting the ceiling is. He keeps on reminding me to relax which is frustrating me even more. Doesn’t he think I would if I could? So my sack keeps tightening and shrinking up, which is bloody hopeless for the doc. Finally, either from boredom – white ceilings aren’t really much of a distraction, or from sheer dumb luck, my body does what it’s supposed to and the doc gets a chance to check out the lump I had felt not long after Craig kneed me during the game. I’m a little bit sore and that’s a bit scary, especially when the doc covers me up and tells me to get dressed and sit back at his desk with Mum.

While I’m dressing, he and Mum are talking pretty quietly on the other side of the curtain. They’re not trying to keep secrets from me, I don’t think, but I can’t hear them properly and I’m still zipping my jeans up as I walk back to the chair by Mum. I want to say something casual and funny to show that I can take it, whatever it is,

“So, no grandkids today, hey Mum?”

But I can’t and the doctor looks me over before telling me what he’s obviously already told Mum,

“Sam, I felt the same swelling that you did and I’m a bit concerned about it. Considering your previous history, I’d like to get a closer look. I’d like you to have another ultrasound and we can see what it is we’re dealing with exactly.”

I don’t really get it, but the doctor must see that in my face and continues with more explanation. He thinks that the cyst I’ve got, a damaged bit on my ball, like a blister, is changing and not in a good way. The ultrasound is going to give a clearer picture of it, an ultrasound being a bit like an x-ray for bits of the body that aren’t bones. The short of it though is that it means another trip to another doctor; another indecent exposure and another experience of gel and a kind of microphone looking thing skidding about around my scrotum. Forgive me if I’m not thrilled by the idea!

“Shit! No.”

“Sam,” Mum starts to warn me of my language, but then must realise how I feel and breathes out deeply, “Well, yes, fair enough.”

Referrals are made and Mum and I are on our way home. I can tell she’s freaking out a bit, and I am not really sure what I am feeling. Are there emotion rules on this?

Dad and I get on ok. I’ve been visiting him every second weekend for about 8 years. Best of both worlds, Mum used to say; that I could be with her and my brother and sister during the weeks and then to Dad’s every other weekend. I used to spend a bit of each weekend riding down to this little fishing spot with my step brother. We’d sit there for hours; not always catching much, but it was good to hang out. Jake is about my age, a year younger, another thing Mum said was good about going to Dad’s, and we hung out together, fishing and biking and stuff. I didn’t tell him much about the whole check up thing. If I did have to do any explaining, if anyone asked, I’d just say I had a third nut. That was as easy as it got and it was pretty much what I thought anyway. Going into detail about epididymal cysts and ultrasounds just wasn’t a topic of conversation. Still isn’t. It’s not the sort of thing you generally share with anyone, and most of the time it was just a hassle, part of the stuff I did at Mum’s house.

Mum said that she would keep the school in the loop and I wouldn’t have to say anything. She was trying to save me the embarrassment of talking about it, but you know what? After you go through what I have in the past nine months, you get pretty casual about it. What might have been embarrassing before is now just routine. Words, technical or slang or swearing, are just words and whether or not I tell a teacher that my nut had to be removed or agree with a counsellor that I do freak out about sex and getting it up makes no difference really. Not compared to what I’ve been through.

The doctors ultrasound it again and decide that the cyst has changed some and they need to go in and have a look. My understanding of the op was that once I was under the general anaesthetic, the surgeon would open me up, like cut my sack, and take out the original cyst and kind of scrape the left testicle to get the still swollen, enlarged bits off it. So that’s what I expected to have happened when I woke up; scar and stitches in my scrotum and to feel pretty sore around the balls, as you would. When I woke up and came to, that’s not what I felt like. I put my hand down to check it out, to see if I could feel the incision, but I felt nothing. Honestly, nothing. No ball on the left side at all. What the hell? Then I panicked. What was going on?