Nuts, a ball and other four-letter words. A young man’s journey with testicular cancer. Part 4.

This is Part 4 in a series. Read Part 1 here, Part 2 here and Part 3 here.

Sick to death of hospitals, specialists and waiting rooms!  Uncomfortable chairs, fake plants and tinny elevator music.  Some rubbish that even Mum doesn’t like.  Miserable looking patients, waiting for their turn to whine to the specialist about how many times they’ve thrown up this month or how they’re still afraid that IT’ll come back. IT being the cancer.  Like it’s some big secret conspiracy.  For me, I’m there cause I have to be – if they’d let me run the interview, it’d go a whole lot faster too – then I could go home and leave behind the pitying stares of the “support people.”  Their silence speaks pretty loudly,
“Oh, he’s young isn’t he?  Poor thing.” And then the tightly drawn, pathetic smile and the pitying downcast eyes as I stroll by, my thongs slapping against the regulation medical lino.

If the specialist would let me run the appointment – much faster and he’d still know what he wanted to.

“Yep, my ball is still missing.”

“Yep, scar’s healing – itchy though.”

“Yep, pickline hurts like hell, but it’s still there.”

“Yep, lost all of my hair now and the chemo still makes me feel like shit.”

“Feel like a druggie and can’t wait to get this over with.”

“What can you do for me? Well, are you a miracle worker?”

“Can you grow back a normal nut and all of my body hair? No?”

“Fine, I’ll take a Coke, ta.”

“Let’s get this scan thing done, ay?  Where?”

“Yeah, I know.  Drop me pants, move dick out of the way; nah I’ll do that bit thanks.  You concentrate lower.”

“Hey, this chemo’s got something going for it after all – can’t get a boner when you’re this drug-fucked.”

“At least I don’t have to be praying against that under my breath the whole time you’re down there.”

“No, thank you, Doctor.”

“That will be all, see you next month.”

See? Done and dusted in minutes.  Gary’s good for this though.  I’ve never called him Dad, and he doesn’t expect me to, but he’s been in these waiting rooms almost as often as Mum and me.  Always the same, brings his mag, but only reads it if my eyes are closed.  Without that horrible pitying look, he’s ready to talk or listen to me if that’s what I want.  He’s copped a fair bit of mouth from me and a fair few tears from Mum.  She doesn’t cry in front of me – not if she thinks I might be listening either.  She’s always like,
“Right, mate.  Let’s do this, hey?”

I haven’t been embarrassed in front of Mum – if ever I have been a bit shy of stripping off, she reminds me that she’s changed more of my nappies than even she can remember and there aren’t any places that I’ve got that she hasn’t kissed better at some time.  I was much younger then though, Mum! So, being Mum, she doesn’t cry to me, just to Gary when she doesn’t think we can hear her.  I’ve only seen her really lose it once this whole time and that was enough to last me a long time – it was awful!

Nuts, a ball and other four-letter words. A young man’s journey with testicular cancer. Part 3

This is Part 3 in a series. Read Part 1 here and Part 2 here.

I don’t think I have ever been so devastated in my life and I never want to be again. I’ve never had to use the word devastated before, but that’s what I was. I’ve lost my left ball for fuck’s sake! I cried until I couldn’t breathe and then I cried more. My body hurt like hell from the surgery and my lungs were gasping for breath and still I couldn’t stop. At the time I couldn’t think straight and even when I could, I couldn’t get my head around it. Why would they do that? I’m only sixteen. My body hasn’t got enough testosterone to make me fully a man. One ball, that’s like half a eunuch / half a gelding – good for nothing. What if my voice doesn’t finish breaking properly? Will I LOOK lopsided? I’ve only just got most of my body hair, will that go too? Of course, I don’t want kids now, but I might, later. I haven’t even slept with my girlfriend – will I ever get to do that? Oh, Tasha! I’ve read in books sometimes that “he cried like a little girl” but I didn’t. I bawled and screamed and cried and sniffled just like a guy whose life has been cut off, just like his left nut, before he’s had a chance to do all that bloke stuff. I must have passed out again then, what was I gonna I tell Tash?

The doctor and Mum explained it to me more once I was fully awake, but it felt like the worst nightmare ever. I was trapped in it and couldn’t get out. Instead of a cut in my sack, I had stitches and pain just above where my pubes had been. That’s a story in itself, the shaving there. So, pain and stitches on what they called the ‘bikini line’ – yeah right, bikini line! But I’m getting a bit off track. It turns out that when I was fully under, the doctor had another grope around and didn’t like the feel of my left ball. Great. So, for some reason I still don’t fully get, they cut me to the left of my dick and pulled the whole ball up through there. When he saw it, the doc went straight out to Mum in the waiting room,

“Ms Brown, I think its cancer.”

I reckon he probably told her more than that. All the technical stuff that she has always known more about than me; the fact that the cyst had overtaken the whole epididymis on my left nut and that the reason it stayed enlarged was that as the swelling from the knock to the groin was going down, cancer was coming in and taking its place. Mum reckons that there had always been the concern that my cyst might go cancerous, but we hadn’t talked about it – Mum’s a ‘don’t borrow trouble’ sort of person.

Right now though, she wasn’t borrowing trouble, it was standing in front of her and Gary in surgical scrubs offering to give her the lab results just as soon as he’d finished cutting my nut off, stuffing what was left of me back in, stitching me up and dissecting the traitorous, disloyal, backstabbing thing. I don’t blame my mum, I wouldn’t have wanted to hang on to a cancerous nut, but shit it scared me when I first felt it gone. What is the world coming to when you can’t trust your own gonads?

Later, after my chemo, I was allowed to wear a beanie to school. A teacher at the Junior School called me on it when we were over there for the some assembly or service. I can’t remember exactly what she said, but it definitely had the words “disrespectful” and “inappropriate” thrown in for good measure. I could have done it any number of ways, but I thought, damn it, she’s being so rude to me, getting up in my face. So I snapped,

“I’ve had cancer!”

I felt like adding, “Bitch” but managed to stop myself. I made her feel like shit though, which felt pretty good actually. She knew who I was, I suppose stories like mine are too good to stay secret, not that it was ever supposed to be a secret.

“Oh, you’re Sam,” and she walked off, no sorry or anything. Bitch.

After my surgery and chemo, I started riding my bike again – had mates ask about that – the pressure on my groin was obviously not a problem when I stopped catching the bus and started riding to school. Mates are funny like that; maybe it’s a guy thing. We are always, according to my sister, giving each other stick about being a man, or not. She’s probably right though, way back in Primary school I remember playing footy with my mates and it was a badge of honour to be able to walk after a good hit to the groin. So most of them knew a bit about what was going on, but not much, and while I reckon they cared, what could they do? I had a third nut, and then that I’d lost my nut in surgery. Not much chat, guys don’t do that,

“You alright?”

“Yep.”

And that’s it. Miss reckons that girls would have laughed and cried about it together and talked about every little feeling. I don’t get it.

Nuts, a ball and other four-letter words. A young man’s journey with testicular cancer. Part 2

{This is Part 2 in a series. Read Part 1 here.}

So, we’re at the doctors, like I said. I’m trying to concentrate on the really uninteresting ceiling while he feels around. It’s slow going, this examination, cause even though I’m trying to relax and he’s treating me casually, there are certain physical reactions that just happen, regardless of how interesting the ceiling is. He keeps on reminding me to relax which is frustrating me even more. Doesn’t he think I would if I could? So my sack keeps tightening and shrinking up, which is bloody hopeless for the doc. Finally, either from boredom – white ceilings aren’t really much of a distraction, or from sheer dumb luck, my body does what it’s supposed to and the doc gets a chance to check out the lump I had felt not long after Craig kneed me during the game. I’m a little bit sore and that’s a bit scary, especially when the doc covers me up and tells me to get dressed and sit back at his desk with Mum.

While I’m dressing, he and Mum are talking pretty quietly on the other side of the curtain. They’re not trying to keep secrets from me, I don’t think, but I can’t hear them properly and I’m still zipping my jeans up as I walk back to the chair by Mum. I want to say something casual and funny to show that I can take it, whatever it is,

“So, no grandkids today, hey Mum?”

But I can’t and the doctor looks me over before telling me what he’s obviously already told Mum,

“Sam, I felt the same swelling that you did and I’m a bit concerned about it. Considering your previous history, I’d like to get a closer look. I’d like you to have another ultrasound and we can see what it is we’re dealing with exactly.”

I don’t really get it, but the doctor must see that in my face and continues with more explanation. He thinks that the cyst I’ve got, a damaged bit on my ball, like a blister, is changing and not in a good way. The ultrasound is going to give a clearer picture of it, an ultrasound being a bit like an x-ray for bits of the body that aren’t bones. The short of it though is that it means another trip to another doctor; another indecent exposure and another experience of gel and a kind of microphone looking thing skidding about around my scrotum. Forgive me if I’m not thrilled by the idea!

“Shit! No.”

“Sam,” Mum starts to warn me of my language, but then must realise how I feel and breathes out deeply, “Well, yes, fair enough.”

Referrals are made and Mum and I are on our way home. I can tell she’s freaking out a bit, and I am not really sure what I am feeling. Are there emotion rules on this?

Dad and I get on ok. I’ve been visiting him every second weekend for about 8 years. Best of both worlds, Mum used to say; that I could be with her and my brother and sister during the weeks and then to Dad’s every other weekend. I used to spend a bit of each weekend riding down to this little fishing spot with my step brother. We’d sit there for hours; not always catching much, but it was good to hang out. Jake is about my age, a year younger, another thing Mum said was good about going to Dad’s, and we hung out together, fishing and biking and stuff. I didn’t tell him much about the whole check up thing. If I did have to do any explaining, if anyone asked, I’d just say I had a third nut. That was as easy as it got and it was pretty much what I thought anyway. Going into detail about epididymal cysts and ultrasounds just wasn’t a topic of conversation. Still isn’t. It’s not the sort of thing you generally share with anyone, and most of the time it was just a hassle, part of the stuff I did at Mum’s house.

Mum said that she would keep the school in the loop and I wouldn’t have to say anything. She was trying to save me the embarrassment of talking about it, but you know what? After you go through what I have in the past nine months, you get pretty casual about it. What might have been embarrassing before is now just routine. Words, technical or slang or swearing, are just words and whether or not I tell a teacher that my nut had to be removed or agree with a counsellor that I do freak out about sex and getting it up makes no difference really. Not compared to what I’ve been through.

The doctors ultrasound it again and decide that the cyst has changed some and they need to go in and have a look. My understanding of the op was that once I was under the general anaesthetic, the surgeon would open me up, like cut my sack, and take out the original cyst and kind of scrape the left testicle to get the still swollen, enlarged bits off it. So that’s what I expected to have happened when I woke up; scar and stitches in my scrotum and to feel pretty sore around the balls, as you would. When I woke up and came to, that’s not what I felt like. I put my hand down to check it out, to see if I could feel the incision, but I felt nothing. Honestly, nothing. No ball on the left side at all. What the hell? Then I panicked. What was going on?

Nuts, a ball and other 4-letter words! A young man’s story of testicular cancer. Part 1.

A number of years ago, I wrote a short memoir in first person perspective for a young man who I knew through a school I previously taught at. I had recently broken both my ankles whilst on holidays in Indonesia (perhaps more about that in another post) and needed to do something that helped me look outside myself and my situation. Here’s the first installment:

Hey,
Found you on face book and thought I’d say hello and ask you a couple of things that maybe would be harder to ask in person. I’m doing a lot of writing at the moment, since walking is out of the question, and I wondered if I could ask something. I know you’ve been ill this year (that’s about all I know about it) and I wondered if you might consider sharing your story with me. I would be honoured to write it, if you feel like sharing. Maybe it’s something you want to do yourself, so that’s ok too. I don’t know you real well, so if this isn’t ok, let me know. Just thought I could ask and you could honestly tell me what you think.
Thanks for even thinking about it,
Mrs Ross

It’s one thing being monitored for a condition to do with your nuts when you’re 12. That’s one thing, that’s a Mum thing, that’s a thing we don’t talk about. Well I don’t! It’s quite another to have to say to your mum, when you are 16, that not only have you been hit there, hard, during a footy game, but you think there is something wrong. How do you say that?

“Ah, Mum, my balls are hurt. Kinda swollen or something.”

And then the kicker,

“Can you have a look?”

Not easy to ask and harder to let her do it. You can probably imagine how it went from there. Both of us a bit embarrassed, mostly me, but this is mum after all. She’s pretty cool, but this isn’t good. Did I mention we were in the car on the way to footy training when I told her? Now that would’ve been hilarious if she’d had an accident then. Just to have to tell the police what she’d been doing and why she had her hand off the wheel. Anyway, we got through it and she agreed with me that there was something else going on. So then we take it (them? ha ha) to the professionals.

This isn’t that unusual for me. Apparently I have this hormone that is supposed to stop doing its stuff when you’re about 12 and mine didn’t. It’s caused docs some concern and I’ve had to be checked out every 6 months or so, with ultrasounds since I was 14. The first thing I thought when we got referred for an ultrasound was; pregnant women have ultrasounds, don’t they? And I’m pretty damn sure that whatever these odd hormones have done to me, I’m not pregnant!

They monitored me for changes in hormones and a benign epididymal cyst that I figured was like having a smaller third testicle and that’s what I told anyone who ever questioned me. So, having to strip in the doctor’s surgery is not new to me. About now, you’re probably thinking one of a couple of things – I’ve heard most of it before:

a) Shit! I’d hate to do that, imagine if the doctor touched you and….well, you know…?

b) Oh, that poor boy. That would be very traumatic through his puberty; I wonder how it is for his self esteem?

c) No way! Not now, not ever – keep it to yourself, man!

Or some combination of the above. So, let’s leave me there for the moment. In front of doctor, flat on my back, knees up, letting the guy with the gloves feel around my balls…

As I said, I’ve been checked out more than most guys my age, but apart from that, I’m pretty average I reckon. Got an older brother, younger sister and we get on ok I guess. My mum and dad split when I was 8 and I’ve always been pretty close to my mum. Pretty into football, been playing for 4 years and this year I’ve made the A grade. I’m supposed to make this as honest as possible, so I’ll tell you that I was pretty buff then. Training 3 nights a week and games on the weekend will do that for you. So I was feeling alright. And, before you ask, yes, I’ve got a girlfriend. She’s hot. I’m playing A grade and going out with Tash for about 6 months. School is ok. Life is pretty good. Then some *#@!wit gets his shin up hard in my groin in the second match of the season. I go down, winded, and that, I reckon, is where it all really starts.

I don’t know yet where it ends, but it’s been a long journey and it’s only been nine months since it started. There have been good days and bad, ups and downs I guess you could say. Each time I go down it feels like I can’t go any lower, but rock bottom is a LONG way down. I wonder whether it’s harder to fall when you’ve been so high before that. As I said, I’ve led a reasonably average life, but I’ve had it better than some.

{More to come next week.}

Updated: Part 2 is available here.

No fear of flying!

There is nothing like the feeling of flying – even if it is down a concrete path in a wheelchair!  A boy I don’t know very well, from year 11, who makes me laugh and teases along with the best of them, offered to push me back down to the next class I was helping with.  Actually, he first asked if he could sit on my knee and I could take him down to the ITD building.  I’m not sure who was more surprised when I compromised and said I would only take him as far as the concrete path went cause I didn’t do “off road” real well.  I think I would have had my bluff called if he had agreed, but I’d like to think that we would have given it a good go.  So I think that taking me to my next class was the trade off.  I certainly could have done that bit on my own, but I think there is a certain buzz from pushing people in wheelchairs, maybe it’s the control, so who am I to say no?  Sam is not careful.  Well, that’s what I reckon it looked like as we whizzed down the hill.  The three of us flying.  Me in the chair, Sam running behind me, holding the handles carefully as he pushed, and Josh trying to run and laugh at the same time beside his best mate.  I think I was more worried for the innocents who might inadvertently get in our path; there is no such thing as power steering on my wheelchair.  Although I did promise (some might say threaten) as we flew, that I would hunt him down on crutches if he let me go, I actually felt amazing.  Yes, I like being the centre of attention.  Yes, it’s exhilarating and a bit of adrenalin on a Monday afternoon can be a good thing.  But it’s more than that.  Sam’s been sick.  I haven’t asked him about it and I don’t know many details, but it’s been a long haul for him this year.  Cancer and chemo don’t make for a party sort of feeling.  Tears started for me when, at a staff meeting, he was given special uniform dispensation, cause apparently his formal one just “felt too heavy.”  There are the highlights though.  He’s back in his formal uniform now, as scruffy as they seem to be able to make it look, and having your best friend have his head shaved at the same time as you in solidarity and support must feel pretty good.  I’m going to have to ask, maybe.  Maybe it’s not important that I know.  But my guess is that if I felt like I was flying, I’m pretty sure that being able to run like that, laughing, in control of a teacher’s transport and scattering juniors as you go must have felt pretty good too.  Maybe I’m trying to make it into something it’s not. All of us were breathless as they stopped me at the door and wandered off – there was no ‘moment’ – but it was great!

I’m a person who…

Warning! Truth ahead!

I’m a person who:

*  has a very full life
*  loves doing lots with friends
*  is one of the worst housekeepers I know
*  is a master of the scurryfunge
* has lots of ‘doing’ energy outside of home, but not often ANY at home
*  has discovered she loves watching ‘gross’ medical and dermatological videos on YouTube
*  is learning much more about herself as she heads towards middle age
*  is generally accepting most of it
*  should not be allowed near stationery shops or ebay with $
*  used to buy to feel better
*  is a better talker than listener, but I’m learning
*  loves romance novels
*  doesn’t make the bed
*  is a mass of contradictions
*  knows productinating is a skill
*  has decided to accept depression, but not be a victim to it
*  excels at word games
*  has one of the best relationships with her mum that she knows
*  hasn’t properly cooked a meal at home for years
*  wants my kids to be happy in what they’re doing
*  is scared of missions trips, but going anyway
*  loves recognition for achievements
*  loves all children – mine or not
*  cries
*  loves organising 1 off projects or systems
*  suffers no embarrassment
*  is an advice giver
*  wears long pants because she IS too lazy to shave her legs
*  often realises later that I’m friends with someone who perhaps didn’t seem to like me to begin with. I find it a challenge I think
*  says what I mean
*  will take criticism, but doesn’t always like it
*  is generous
*  dislikes shopping of any kind, immensely
*  gets hurt if people think I’ve done the wrong thing and I haven’t
*  takes responsibility
*  asks lots of questions
*  will avoid blood tests if possible
*  would love to foster care but is afraid of losing or failing those children
*  doesn’t like pork
*  has phases and fads of things (by choice) and people (not by choice)
*  would love you to comment about yourself, or me.

☺🐛

Veritas, Eski

Here’s Your Next Song, 5 Seconds of Summer!

My daughter has been playing me some of her favourite bands’ music recently and I’ve had “Don’t Stop” by 5 Seconds of Summer stuck in my head for a few weeks – just ask some of my classes! I’m not the only one! My 3 year old loves choosing the music that we play in the car and the other day had me confused when he asked,

“Can you play Dawn Star, please?”

“Dawn Star? Can you tell me what else it says, so I know which one?”

“Yes. Dawn Star doin’ whatcha doin! Cause I like it!”

Then I figured it out…”Every time you walk in the room, you’ve got all eyes on you…”

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So, on a YouTube wander, I found myself watching Belgian interviewer, Jolien Roets, interviewing the band. Some of it’s funny, if a bit risqué; some entertaining. Towards the end, the interviewer tells the guys about the Belgian Red Nose Day, part of which is raising money and awareness for mental illness in young people. Jolien then asks if 5SOS have ever experienced that sort of thing. A couple of the guys answer quickly enough that they have, but no details are given as to what. Ashton Irwin follows up with more, saying that he doesn’t think that they (5SOS) ought to talk about their own experiences, but that they do know that it’s (depression etc) a prevalent thing and that as public figures, it is their role to talk about and sing about it. AGREED, thanks guys!

Throughout this year, there have been articles on band member Michael Clifford’s mental health; his visit to a therapist and the fans support of him during this time, proving that the group’s followers agree that sharing is caring. I want to add my support to that already given, Michael. I know first hand what it’s like to ride the ups and downs of the rollercoaster (Read about my personal experience here) and of supporting someone who is living it (My son’s story from my perspective and in his own words). I can only imagine what living it out in the public eye must be like. Good for you for sharing about it and for all who support you. Keep it up!

Anyway, back to the title of this blog. With all of the above in mind, and ESPECIALLY since hearing the new album, “Sounds Good, Feels Good,” I’ve been inspired to write you lyrics for a new song that you might like to include in an upcoming album?? That bit is up to you, but here we go.

I love the sound of the new album and I know that you’ll do an amazing job of transforming these lyrics into a song with energy, anger, sadness and love – all the things I’ve felt over the past 25 years and tried to put into these words. I’ve written two versions of the song; one from the perspective of the person suffering (hate that word) the mental illness and one from their perspective of someone who loves them and is trying to help. I couldn’t decide which one I most wanted to share. Which, and if, you decide to do anything with is up to you. If you do, credit me?

Maybe people will stumble across my blog and these will be a comfort to them, and I’ll be ok with that, that’s what they’re for.

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Private War #1

I’m living in a world that you’d find hard to enter

Blocked by a door that’s locked, I don’t want you here

I need you more than I can say

I don’t understand when I push you away

I tell you it’s going to be ok even when I don’t think it is

Say you love me when I don’t believe it

It’s not even as easy as crying all the time; wish that’s all it was

How can I explain there’s nothing wrong – there’s no reason and no cause

It’s like fighting a private war

Against a very public enemy

It’s like fighting a private war

With the one who means the most to me

I want you to stay with me

Understand I need to be alone.

I reach out to the reaching hand, but find I can’t grab hold

I can’t be left alone.

On days where my blanket is all I can hold

Where I want to snuggle, but my energy’s low

Just laying here staring at the ceiling

Wishing these feelings would fade away

It’s like fighting a private war

Against a very public enemy

It’s like fighting a private war

With the one who means the most to me

Invite me even though I’ll say no.

Take me places even though I’ll want to run straight home

Wanting to step out and take it; open up and welcome the world

While you’re lifting me out of the bed; I’m pushing you out the door

Try to understand when I don’t answer your calls;

When the best conversations we have are by text.

Sleepless and restless; tired but wired.

Allowing me to cuddle

God knows if you’re ready, to take the vast extremes

The public face, the hyper, the dreamer, even the screams

It’s like fighting a private war

Against a very public enemy

It’s like fighting a private war

With the one who means the most to me

I don’t want to get out of bed today – maybe I can’t.

It’s like fighting a private war

Against a very public enemy

It’s like fighting a private war

With the one who means the most to me

Private War #2

You’re living in a world that I find hard to enter

Blocked by a door that’s locked, no one knows who by

I want to tell you it’s going to be ok even when I don’t think it is.

I want to hold you close and say I love you through both of our tears.

I want to tell you I love you even though you won’t believe me.

I want to help, and try to understand when you need to be alone (can’t be left alone)

I reach out to the reaching hand, but find I can’t grab hold

It’s like fighting a private war

Against a very public enemy

It’s like fighting a private war

With the one who means the most to me

I’ll invite you even though I know you’ll say no.

I’ll take you to places though we’ll have to go home.

Wanting you to step out and take it; open up and welcome the world

Lifting you out of the bed; pushing you out the door

On days where your blanket is closer than me.

Where you just want to snuggle, but with your pillow, not me.

I’ll try to understand when you don’t answer my calls; when the best conversations we have are by text.

Allowing me to cuddle you

It’s like fighting a private war

Against a very public enemy

It’s like fighting a private war

With the one who means the most to me

God knows if I’m ready, but I’ll take the vast extremes

The public face, the dreamer, the loner, even the screams

When that demon grips your mind, I’ll be there

Though I know that I’m flying blind, I’ll be there

It’s like fighting a private war

Against a very public enemy

It’s like fighting a private war

With the one who means the most to me

You wrap yourself in your hard shell

To protect yourself in your private hell

And it cuts me that I cannot be the answer

But I don’t want to put that guilt on you

Cause I’m afraid you might just snap under the pressure

I don’t know what will pull you through,

But I’d lay down my life for you,

I can’t tell you that cause life is so unstable

Call me when you’re able

It’s like fighting a private war

Against a very public enemy

It’s like fighting a private war

With the one who means the most to me

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Anyone reading this – these are for you. The comforter and the uncomfortable; the alone, lonely or loner. You aren’t alone. There are people who feel the same and people who love you. People who want to stop, or help, the “Private War.” I promise.

Tough life!

It’s a tough life!

I’m on an excursion today with my Year 11/12 English Communication class. We are here because we are learning about persuasive speeches. Yes, really.

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I know, it sounds unlikely. But despite appearances, this is a valid excursion. I’ve tried something new with my class this term. All the info I gave them was that we had to complete a persuasive speech for our assessment and they planned the term in a way that they would like to learn. Of course, they were quick to point out that they’d NEED to visit a theme park at some point.

“Persuade me,” I said.
“We could write about which is the best ride or theme park,” they said.
“Ok,” I said, “I’ll try.”

So I spoke to our Head of School, explaining the importance of the students taking control of their learning and being inspired to learn. I think I was a bit surprised when he said yes! The condition was that I have the requisite paperwork in the very next day and that I make use of MY persuasive skills to write the letter to parents. I’m pretty impressed with my efforts…

Excursion – Wet n Wild
This term, 11/12 English Communications are involved in the creation and monitoring of their term plan. During the first lesson of the term, students collaboratively developed a Term Overview and detailed what they felt they needed to learn in order to complete the assessment during the exam block. To motivate and inspire them to write an interesting persuasive speech for the exam, they decided to spend the day at Wet ‘n’ Wild on Thursday, 22nd October. Due to the in-class nature of the planning, this is an optional activity which is not included in our excursion schedule. We encourage you to allow your child to attend to encourage them as they take responsibility and ownership of their learning.

What do you think?

I sent some of the photos above to the HOS with the message,
“Wish you were here?” He was thrilled. This is the message I received in return,
“It’s important, she says…It’s for the students, she says…it’s valuable learning time, she says…💩.” Such support! 😜

I also received a few messages from my Year 11 class (or what was left of them; there were a number of excursions today).

J: “theirs only 3 of use that are in english… yay [sic]…do we still have to do today’s work?”
{I reply in the affirmative}
“Oh.”

G: “Here’s my work from today. It’s a bit quiet.”

G: “Hello again, I would just like to point out how creepy the front page of the pdf document is…sorry if I ever look like this in class 🙂 Feel free to add a caption.”

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I nearly fell off my banana lounge with laughter! That kid looks positively murderous! I’m sorry if ANY of my students feel even the remotest reason to look like this in my classes!

Caption away! I’m very much looking forward to what you all come up with.

So there you go. My day; my students; only 3 of whom decided to line up for a ride at the exact time we were to meet, were 42 minutes late and held up the whole bus full of those waiting. And they did apologise. After asking if they had time to grab a quick frozen drink!

And my new swimmers were a great success – to me.

Veritas, Eski

Depression – The roller coaster that doesn’t stop.

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I’m afraid to tell people about my struggle with depression because of the stigma that is often attached to it. Think of the vocabulary associated with depression. Depression, the very name itself means ‘down, hollow, flat, lower’. Mental health. Psych. Psychologist, psychiatrist, psychiatric – it’s not a big leap.  Medication.  Issue. “issue” We laugh, but it’s true. Maybe I’m seeing it through eyes of fear, and that is probably the case.  I was nervous and even a bit scared of telling you all of this today. Scared of the way you might respond.  I wanted to think of some eye opening beginning that would share with you just how hard sharing this is going to be for me.  One glorious 2am last week some time (don’t you get the best ideas at 2am?) I thought that a photo in here of me naked might most accurately represent how I feel about sharing. But almost as soon as I thought it, it was followed by, Argh! I can’t do that! I’m not comfortable enough to let go of the ‘supports’ that I have in clothes.  What about in underwear? That’s pretty vulnerable. Then I couldn’t stop thinking about did I have knickers that matched my bra? And that idea was pushed aside too.  I figured I’d tell you about it though because even though it’s funny, it’s a very, VERY accurate analogy of how exposed I feel right now.
When I tell people that I have depression I usually get one of four responses: a blank look and an uncomfortable silence which can lead to withdrawal; a ‘fix it phrase’ (more about that later); agreement – either they, or someone they know, have depression and we share our experiences or mostly; disagreement – “you’re too happy and funny to have depression!”  And although I’m telling you about other people’s responses to me, these are the very thoughts I’ve had about myself.  I want to share some of that with you today.

I’m sometimes struck by the day and night metaphors for depression. Depression is Beyond Blue or The Black Dog. Night times are often harder; that getting up in the morning, however lovely, has sometimes been a huge trial for me and how many times I’ve felt brought into the light despite depression.  I’d rocked up to an event that I was looking forward to and next thing I was feeling all teary and that’s on the days I could manage to go at all. And that’s the story of my depression through the years.
When I look back, with that 20/20 vision hindsight gives us, I believe that my depression started when I was around 17 or 18.  Yes, I’ve always been the happy, slightly flippant person that you all know and love 😜 but I was visiting a friend and for no apparent reason ended up crying for about a day and a half.  I didn’t know why and I’ve got to say I didn’t really think much about it til late last year.  At various times during my life since then, I’ve had similar experiences. After Markeri was born, we moved to Brisbane from Cairns and away from most of our family and support.  When I went to the doctor saying I was tired and teary all the time, it’s not that surprising that postnatal depression was diagnosed.  With a 3 year old and a 1 year old, what else could I expect?  It was some months after that first diagnosis that I admitted defeat and started taking anti-depressants.  I went to see a psychologist and felt particularly irritated by the whole experience; the fact was, I didn’t have anything to discuss with her – what was wrong with me? It felt like everything and nothing at the same time.  Did you hear the words I just used? Admitted defeat; irritated; what was wrong? Everything; nothing.  These are common feelings for those with depression.  They are some of the major signs.
Around the same time, the kids and I found the playgroup and the Wesleyan church at Logan, where we still go today.  At first I went to church for the children’s sake, I wanted them to have a good grounding, like I’d had.  I called myself a Christian because I’d grown up going to church, but it was not until a number of months later that I realized the truth. Logan, my eldest, was about 3 ½ and we were driving home from church after a group of puppeteers had performed.  Their theme was having a clean heart when Jesus was in it.  I can still remember the barbershop quartet of wide-eyed puppets singing “When Jesus Came Into My Heart.”  As we drove home, Logan asked me a question about the black heart and the white heart and I explained it to him.  It still amazes me that I could explain the way to accept Christ and still completely miss my own lack in doing so!  Logan got it though and I led him through a prayer to ask Jesus into his heart and even Markeri, at about 18 months of age, piped up with “Jesus my heart too.” And I still missed it.  I don’t remember the day, but I do remember being in the car at night, waiting to go to a choir practice – following the psychologist’s advice and doing something for myself – and having to lay my chair back so no one would see the sobbing mess that I was.  I’m glad that God understands because it wasn’t until then, when I felt that this was the lowest point I could possibly reach, that I prayed for myself for Jesus to come into my heart. I admitted my complete inability to do this on my own and that I needed Him.  I’ve never been sorry for that step, but it’s made me feel like a fake at times.
For years I didn’t want to tell anyone how useless I felt or about my irritability with the kids.  For someone who is usually pleasant, relaxed and competent – I was a screaming fishwife, tense and feeling like a failure.  I didn’t even admit it to Neal – hence the sobbing in the car while he was at home with kids.  On the outside I was doing well – I was helping to organize playgroup and running a number of the activities. I was worship leading at church. I was completing my degree by correspondence.  I was working part time. Neal and I were managing to make one and a bit very small incomes work and even pay for private school. I had two lovely children and I was pregnant again – watch this space! I can see some of you smiling and nodding already, you know where this is going, don’t you? And down we go again.
So many times I’ve stood at the front of the church to lead worship feeling like a complete fraud.  I was praising God that day, but it seemed that the depression meant I wasn’t happy enough with what He’d given me. If I were, I wouldn’t be feeling this way, would I? I was thinking to myself and apologising to God – if they could just see how useless I really am underneath this smile…who am I to be leading anyone else to worship?  If I could just work a little harder, trust more, have more devotional time and have more faith, I could get God to fix me.
Having convinced myself that I could and would work through this, I took on everything.  Being busy helped to squash out some of those feelings of uselessness.  And being tired from doing everything gave me some excuse to feel the way I did, even as I felt that there was no reason to cry and sleep (or not) so much.  I told myself that if I could make it through being pregnant with Toby without falling apart – and I did, as I wasn’t prepared to run the risk of taking medication with unknown effects while I was carrying him – then I could ‘fix’ myself.  Every now and then I’d again admit defeat, cry to whichever doctor I was seeing at the time and try medication and counseling again. Again, I’d feel like a failure and try to believe that the stressors of the moment – financial stress, postnatal hormones, relationship difficulties etc etc were the cause of this and if I could just work hard enough, I’d be able to fix it.  For years, and even now on occasion, I have set myself up as a bit of a “super-woman” (hands up if you are in this category too). I feel I SHOULD be able to do everything and when that isn’t the case, I feel like I’ve failed.  Repeat this pattern ad nauseum for the next decade.
Please don’t get me wrong, my life hasn’t been this massive pit of despair.  Most of the time I really do feel the way I behave. I really do feel good, happy, a little bit silly at times and I don’t want anyone here thinking that it was always a down in the dumps life. It’s just that’s what I’m sharing today, so that’s the bit you get to hear about most.  God has been wonderful to me and blessed me enormously.  He’s also made and helped me face parts of my behavior and personality that I’d just as soon have left alone, thanks very much!
It’s taken some considerable time and pain, but God is finally getting through to me and I hope He will use me to get through to others, maybe even today.  The 12 months of 201-2012 were a very weird mix of fabulous and frightful. Fabulous because I managed to lose 20 kilograms without it feeling like an effort. Frightful because I’ve got at least another 20 to go. (And have now put back on both!) Fabulous because I’ve found some answers. Frightful because of what those answers mean. Fabulous because of the very small package – young Theo – that has been God’s big surprise for us and frightful because of the horrible 9 months he cooked for.  Let me run through those last four for you – the bits about the kilograms are pretty self-explanatory.
For many, many days that year I got up out of bed with minutes to spare, honestly, only minutes, before I had to leave to take kids to school and myself to work. I became a master at showering and dressing in seconds flat and eating toast or fruit on the way. I got a few odd looks as I brushed my teeth at traffic lights and put my shoes on in the carpark.  I became more and more guilty and angry at myself because the kids were being the parent I should have been. When your 12 year old daughter wakes you up cause it’s time to go; your uniform is ironed by a 14 year old son who doesn’t iron his own and you eat a butter sandwich and apple for lunch cause that’s what your 8 year old has made for both himself and you, you know that if this isn’t rock bottom then it’s as close as you want to get.
They don’t say much about it now, even when asked, but as a mum I worry about it. I asked them to write down what they thought and felt about it, cause Neal and I did try our best to explain and I thought that I’d share that with you too.  The boys dictated theirs to me and then gave me a hug and went on playing.  Markeri wrote hers in her room and then apologised cause she wasn’t sure it was the right thing – don’t I feel great now!
Toby – when Mum had depression, I noticed that she was angrier, didn’t really spend a lot of time with people – mostly spent time by herself in her room. I felt upset and annoyed cause I didn’t really like it as it meant that I didn’t have much time with her.
Logan – Mum was often snappier with us and got angry more easily. I was often annoyed cause I was often in trouble that I didn’t think I deserved and it was hard cause I do like spending time around Mum, but when everything I did was wrong, it made that a bit hard.
In late November that year, I had a day off work for the third week in a row.  I love my job and it’s usually a case of ‘wild horses couldn’t drag me away’ but Neal stepped in a told me I wasn’t going on this day because it was the third time in as many weeks that I’d woken up crying, unable to do the simplest things without sobbing and becoming an absolute wreck.  Although there was honestly no reason for me to feel the way I did – no postnatal depression, no financial stress, Neal’s and my relationship was better than ever and I love my job – no reason at all – it kept happening. I went to the doctors’ clinic and asked to see someone as soon as possible.  A new doctor was available and when I cried and snorted through why I was there, she said something I’d never heard before.  She told me that depression like mine isn’t psychological, although, like everyone else I react to stressors, but my depression is chemical.  Like a person with diabetes who needs to top up their own insulin with injections of a created insulin, I need to top up the chemicals in my brain that keep me healthy, happy and functioning with created chemicals – hence the anti-depressants.  She’s since told me that this is likely to be a lifelong medication need for me; that my body just doesn’t make enough and when it’s gone, life as we know it is like trying to run a car on an empty fuel tank.  I felt such a weight off my shoulders just having that much of an answer.  So, I went back on my medication.

A week later, and ten days late for my period, I was back to the doctor again…surprise! We’re having another baby.  I’d have a 15, 13 and 10 year old and a new born baby – who says God doesn’t have a sense of humour?  As exciting as the idea of a new baby was, I had to make to the really tough decision not to continue with my medication for at least the first few months of my pregnancy.  The doctor was certain that the medication she’d prescribed was safe, but I knew that I’d rather struggle with my ability cope than have the worry of the baby not being ok hanging over me. I knew I’d manage that more than trying not to blame myself if anything were to go wrong.  Of course, it wasn’t just me that had to deal with the symptoms that come with the combination of baby hormones and un-medicated depression.  Neal and the kids got me through it and I’m grateful more than I can explain.

I can’t fully do justice to what tha tyear waslike, even with all the talking and writing I do.  I can best describe it as one of the worst seasons of my life.  I’ve never been as tired. I gagged and threw up so much that Toby asked me honestly if my lungs or the baby would come out too.  If getting up was hard before, it was nigh on impossible now.  My Grandpa used to tell us (A LOT) that there was no such word as can’t – but I simply couldn’t do a lot of things and if my guilt was bad before about the kids being the parents and Neal taking on so much, it was much, much worse now.  My first 3 pregnancies were boring, predictable and healthy. I now understand some of the difficulties that others have gone through.  I was sick. I was tested early for gestational diabetes (because of my weight and age – and doesn’t that make a person feel great?) and found that I did have it.  I have a severe needle phobia and had to test my sugar four times a day.  I had acid reflux, indigestion and heartburn to the point that our bed was diagonal and that wasn’t helping either. I was on medication for that and to help me sleep and did I mention the depression?? About 2 months before Theo was born, I simply wasn’t coping and I have to tell you that I felt like the biggest failure ever when the doctor prescribed me valium and three days in bed.  For me, a person who generally takes Panadol sparingly, and who now felt that if I jumped I’d rattle, this was a VERY LOW point indeed.  But, as Neal said, it was that or have him watch me like a hawk.  I think I scared him when I admitted after one utterly sleepless night that I’d looked at the door frame and considered how hard I’d have to hit my head against it to knock myself out and get some sleep.  I scared me too.  I can smile about it now because it’s over and I have the lovely small boy and my family has the relatively normal me back again – but I’m telling you this, not only for my story’s sake, but so you’ll get a little glimpse into what depression can be like.
When I’ve mentioned my depression to others, I’ve been most afraid of the three F responses. Please don’t be offended by these next definitions, they are just my way of expressing my feelings in light of some responses I’ve had.

The fixers – those who have all the answers. If I would just walk more, eat better, get some exercise, lose some weight, read this book, eat a certain type of food, not do…etc
The fragilers – those who treat me with delicacy after they know. The ones who, perhaps unintentionally, make me feel like an unexploded bomb that might go off at any moment.  I already feel a bit of a mental case, tiptoeing around me doesn’t help.
And the ‘faith-ers’ – those who believe that if I had more faith, it would all go away.  God would take it away and the devil would go away.  People don’t use those exact words generally, but the message is there.  Again, don’t get me wrong, I’m absolutely certain God can give and takeaway just as it pleases Him – He’s proven that with illnesses and depression and all sorts of things since the very beginning and still does. But I think that sometimes in our hurry to help and encourage others to get closer to God, we are actually blaming the person with the illness – physical or mental.  And maybe we’re not seeing the fact that it might not be from Satan and that God is working through my depression for His reasons, whether I know about them or not.  I hope so.
I now want to tell others of my experiences and I’ve been doing that on a one-to-one basis, in front of groups and now, online.  I’m hoping God can use my experience to help other people. For those who are aware of their own depression, I hope that my sharing will help them to accept themselves more and not feel alone and useless.  For those of you to whom this is a completely new thought, that you will carefully think about your response to people who are depressed and not unintentionally cause them more hurt.  I want us all to be able to help one another. Possibly there are people reading today, or that you know of in your own sphere of influence, who need help to recognise and accept their symptoms and to take the next step and get help.  And here’s where I want to close.  That all of us, those struggling with depression and those who are not; those who know depressed people and those who don’t; those who understand how it all works and those who don’t – that we all can do for one another what God has done for us. In the words of a lovely song – He looked beyond my fault and saw my need.

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For more info:

Beyondblue

Different types of depression often have slightly different symptoms and may require different treatments. The five main types of depression are listed below.
Major depression – a depressed mood that lasts for at least two weeks. This may also be referred to as clinical depression or unipolar depression.
Psychotic depression – a depressed mood which includes symptoms of psychosis. Psychosis involves seeing or hearing things that are not there (hallucinations), feeling everyone is against you (paranoia) and having delusions.
Dysthymia – a less severe depressed mood that lasts for years.
Mixed depression and anxiety – a combination of symptoms of depression  and anxiety.
Bipolar disorder – (formerly known as manic depressive illness) – involves periods of feeling low (depressed) and high (manic).
Is depression common?
Very common. Around one million Australian adults and 100,000 young people live with depression each year. On average, one in six people will experience depression in their lifetime – one in five females and one in eight males. If you notice any behavioural changes that last for more than two weeks in family members or friends, then it is worth asking if the person may be depressed.

Common behaviour associated with depression includes:

  • moodiness that is out of character
  • increased irritability and frustration
  • finding it hard to take minor personal criticisms
  • spending less time with friends and family
  • loss of interest in food, sex, exercise or other pleasurable activities
  • being awake throughout the night
  • increased alcohol and drug use
  • staying home from work or school
  • increased physical health complaints like fatigue or pain
  • being reckless or taking unnecessary risks (e.g. driving fast or dangerously)
  • slowing down of thoughts and actions.

It’s important to note that you can’t always identify the cause of depression nor change troubling circumstances. The most important thing is to recognise the depression and to seek help.

It’s not always easy to help someone who may be experiencing depression. It can be hard to know what to say or do. Below are some tips.

  • Talk to the person about how they’re feeling.
  • Listen to what the person says – sometimes, when a person wants to talk, they’re not always seeking advice, but just need to talk about their concerns.
  • Maintain eye contact and sit in a relaxed position – positive body language will help both people feel more comfortable.
  • Use open-ended questions such as “So tell me about…?” which require more than a ‘yes’ or ‘no’ answer. This is often a good way to start a conversation.
  • If conversation becomes difficult or if the person with depression gets angry, stay calm, be firm, fair and consistent and don’t lose control.
  • Often, just spending time with the person lets them know someone cares and understands them.
  • Encourage the person to seek professional help from their family doctor or a mental health worker.
  • Take care of yourself. Supporting someone with depression can be demanding. Family and friends should take ‘time out’ to look after themselves.

Veritas, Eski

Guest Author – Freaking people out since ….?

I’ve been invited to read a memoir I wrote a number of years ago to our Year 12 English class later today. My previous teaching partner asked me to do so as I’m not teaching Year 12s at present and they’re learning to write memoirs. This was a pleasant boost to my ego. However, I’m not sure the students will feel as excited. Here’s why:

They’ve been told they’re being visited by a “Guest Author” capital letters and all. They have NOT been told it is me.

In my Creative Writing class on Thursday, one of the Year 12s said to me,
“Apparently we’ve got an author coming to speak to us on Tuesday.”

Just before I open my mouth…

“I hope it’s someone interesting, not just some random.”

Well, my dear boy, you have about 10 hours to hold onto that dream. Then, prepare to be disappointed.

Not great for the ego! However, life is full of surprises – for me as well as students – they might like it.

More on the memoir in posts to come.

Veritas,
Eski 🐛

Veritas, Eski